Sharing Experiences to Help Others
English Rose Suites and b♦home Home Care caregivers, Bonnie Carlson and Renee Riedel, had the opportunity to share their knowledge and rich experiences with caregiving at a Mayo Clinic conference in October.
They spoke alongside Angela Lunde who is the Co-director for the Outreach, Recruitment, and Engagement Core at the Alzheimer’s disease Research Center.
Together, Bonnie and Renee, have a combined 19 years of caregiving experience with English Rose Suites and b♦home Home Care. Many of those years were spent together as two primary caregivers for a b♦home Home Care client with Frontotemporal Degeneration (FTD). They spent years learning about FTD first hand and adapting to the ever-changing needs of their client.
“Bonnie and Renee were able bring the real day to day lived experiences of supporting and caring for a persons with bvFTD. Through their years of trial and error, they shared with attendees their best practices in FTD along with candid stories that offered practical tools and creative approaches for caregivers,” said Lunde.
“FTD affects not only the person living with the disease, but so many people around them. It truly changes the person that the family once knew and can make it challenging for families and caregivers,” said Bonnie Carlson.
The goal for this presentation was to share with the attendees, many of which had family members affected by the disease, that while it can be challenging, there is hope and positivity in the days to come.
“The team of English Rose Suites and b♦home Home Care was so proud to know that Renee Riedel and Bonnie Carlson were sharing their incredible knowledge at the Mayo Clinic Frontotemporal Degeneration Knowledge and Support Summit. Hats off to both of them!” said Jayne Clairmont, owner and CEO of English Rose Suites and b♦home Home Care.
The importance of talking to others and sharing your story was reiterated throughout the conference.
“Disease specific conferences are so important for persons with FTD and their families. With a disease like FTD that is so rare, conferences like this provide much needed information and make the disease seem less mysterious,” said Lunde.
“The self-care emphasized by Angela Lunde was empowering and compassionate. She emphasized acceptance of the new normal and being honest about what you can and cannot control,” said Renee Riedel.