Traveling with Dementia, Alzheimer’s, Parkinson’s

Sometimes travel is necessary, and sometimes it is just fun. Research is connecting travel with positive psychological benefits, leading more doctors to recommend travel for people with dementia, Alzheimer’s, and disabilities.

What once was a luxury is now realized as a component of longevity, health, and wellbeing.

As we age, we begin to think in terms of limitations for the benefit of safety. But stopping activities that soothe and energize the soul also comes at a price.

Being realistic about our ever-changing minds and bodies is wise at every age, but focusing on our abilities and what we can do helps us see possibilities and starts the process of identifying the resources and supports needed to keep our worlds large and connected.

For those traveling with dementia or with complex conditions like Parkinson’s, Alzheimer’s, and disabilities, here are several care strategies and travel tips to reimagine and plan for travel activities that bring comfort, relaxation, and pleasure.

Group Tours vs Private Tours

Tour groups are a popular and affordable way to travel that eliminates do-it-yourself planning, providing an organized travel environment.

However, tours can also mean big groups, long lines, and packed schedules with little flexibility. Ask the tour operator specific questions about walking, accessible bathrooms, and breaks so you can make realistic choices and understand what you need to bring to ensure your comfort and safety.

Although more expensive, private tours are something to consider for those who want a customized itinerary with easy logistics and planning.

Travel Companions vs Professional Travel Services

Traveling with a competent and knowledgeable companion to help plan, lug bags, and troubleshoot the unexpected ensures that you can focus on creating cherished memories rather than managing every detail.

It outsources the complexities of travel so you can spend more time enjoying the journey.

Soliciting a friend or family member is one way to find a travel companion who may accommodate your abilities. However, depending on friends or family usually comes with compromises and conditions.

More often, people find it beneficial to pay an experienced, professional travel companion who is 100 percent there for them and more skilled in their medical needs.

There are fewer compromises, negotiations, and hard feelings. When hiring a travel companion service, ask about their experience to understand how deep their level of support goes. Are they just about executing tasks, or will they provide interpersonal companionship?

For a professional travel service, expect to pay a service fee plus travel expenses.

For those who need medical treatments while flying, there are add-on service agencies such as Flying Angels that coordinate medical professionals.

Itinerary Planning Tips

When it comes to an easy journey, upfront planning is the key.

  • Be realistic about how long you can be away.
  • Plan for naps, breaks, and time-outs as part of effective care strategies to reduce stress.
  • Book direct morning or mid-morning flights.
  • Use smaller airports.
  • Pay for TSAClear, or Global Entry.
  • Consider travel, medical, and/or evacuation insurance for additional safety during your journey.
  • Pre-book private ground transportation to reduce waiting and disruptions.

Travel Disability Rights

Once your itinerary is set, notify everyone of any disability status and accommodation needs, including if someone has dementia. Call the airline to let them know you are traveling with a disability.

Airlines are required to provide accommodations under the Air Carrier Access Act, meaning you can get help with wheelchair assistance or a seat assignment, such as an aisle seat with easier access to the bathroom or a window seat for quiet and fewer interruptions.

Airport personnel sometimes can help usher you through customs and immigration lines. Call TSA Cares at (855) 787-2227 to schedule a Passenger Support Specialist (or ask for a supervisor) to assist you through security, especially at big airports.

Accepted Forms of Alternative Identifications

It’s not uncommon for seniors or someone with Alzheimer’s or dementia to experience anxiety, lose their IDs, or forget to renew them when they expire. But that shouldn’t stop you from making an important trip and creating lasting memories.

If the government-issued ID is missing, have an alternative ID with a photo if possible.

A social security card, Medicare card, or a bottle of prescribed pills with a face page from a facility has gotten people through check-in and security.

In the event of a lost ID, be polite to the TSA agents and explain the situation. A supervisor may need to step in, and extra security screening may be required.

Remember that everyone is there to help.

Packing for Ease and Comfort

When it comes to packing, the benefits of comfort and minimalism outweigh fashion and optionality.

With a few travel tips, it’s possible to simplify the packing process and avoid checking a bag.

  • Choose a few lightweight, mix-and-match outfits with one to two pairs of shoes.
  • Attach luggage tags to carry-ons, purses, and backpacks.
  • Keep medications, plus an extra few days’ worth, with you at all times.
  • Dress comfortably. Have a jacket or sweater, but do not overdress.
  • Medical equipment does not count toward carry-on limits.
  • Noise-canceling headphones, a sleeping mask, and other special items can be comforting.

Navigating the Airport

Most people agree that navigating the departure airport is the most stressful part of air travel, often causing anxiety.

Here are several ways to create a positive experience.

  • Arrive early and take your time.
  • Use the services available to you, such as curbside check-in, airport volunteers, wheelchair assistants, and learn the rules about carrying medications.
  • If flying alone, a caregiver or family member can often get a gate pass from your ticketing airline.
  • If you have a wheelchair, you may be more comfortable going through screening sitting in it.
  • Ask airport volunteers if there is a lounge or somewhere peaceful to go.
  • Use the bathroom before boarding.
  • When at the gate, get a gate check tag from the desk agent.

Travel Resources

Here are some valuable resources:

When deciding on traveling with dementia, remember to incorporate care strategies and give yourself the authority to create your own comfort and routine schedule to reduce stress.

Freeing yourself from the expectations and dependence on those not attuned to your situation and the airport environment is the difference between a stressful and enjoyable experience.

Bon voyage!

About the Author

Carol Giuliani is passionate about supporting seniors in realizing their travel plans. Her company Senior Travel Companion Services, LLC provides customized trip planning and travel escort services for seniors and couples.

Her background includes 25 years of experience as a professional fiduciary and over 35 years as a caregiver. Having completed over one hundred trips, Carol is a trusted partner for those who need or want to get clients and family members safely and comfortably to weddings, vacation destinations, and new states and countries, ensuring their safety throughout the journey.

She and Jan Dougherty have created a program to teach and certify others to become professional travel companions. Certified Senior TravALZ Companions, LLP is setting industry standards so those getting into this business get it right. Carol is also a volunteer at DFAWG and writes extensively about how to make travel safe and comfortable for the elderly and people with mental or physical disabilities.

Visit SeniorTravelCompanionServices.com to learn more.

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